The last few days have been very hard but Allison is slowly getting better. We had hoped that she would not need to get a shunt to regulate the absorption of cerebral spinal fluid and that her body would begin this process again naturally. But she is unable to do this, and is scheduled for a shunt operation on Monday at 5 pm. Brian and I have some real concerns about the shunt, due to problems with infection and malfunction, but at this point we have no choice. At least it will allow us to say goodbye to the infernal external drain and hopefully make some real progress on getting out of this hospital. I'm still uncertain as to when that will be, but everyone here wants us home before we begin outpatient radiation and chemotherapy.
She is so much stronger now. She is taking steps, assisted by a therapist, and has begun eating yogurt, applesauce, and other things she likes, in addition to being fed through a tube. Once she recovers from the shunt operation we will be better prepared to go into the rehabilitation phase of her hospital stay and focus upon all of the things she will need to be able to do successfully at home. Then I know she really will begin to heal. The last few days, as I said, have been the hardest. Brian and I are both walking zombies, but I keep thinking that we only have a little more than a week, hopefully, before we can all be home again together. The pain of what we are experiencing has become more pronounced, but we at the same time are learning to deal with it better. We have so many uncertainties in the future, but for now all I can focus on is getting my girl home again.
Saturday, April 21, 2007
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21 comments:
We are still thinking of Allison daily! The shunt will be a good thing and allow her to heal the way she needs to. We are all looking forward to having you home so we can help take care of you.
-The Nobles
Our hearts and prayers are with you. We hope that the surgery Monday goes uneventfully and that Allison will be going home very soon.
Please remember my offer to be your personal librarian and delivery person.
Sue and Hal
Dianna and Brian,
Surely the shunt will allow Allison to heal more quickly so that you can all be home together soon. We're concentrating our thoughts and wishes in that direction along with your vast and far-flung support group of friends and family. How we admire your strength! Allison and Emily are lucky to have such parents!
Love,
Uncle Larry & Aunt Joni
Stay strong you guys. We are with you, and only wish that we were closer to offer more support.
XO Annie, Tom, Kika, and Wilson
p.s. Tell Allison that Kika wants another flower picture. SHE LOVES IT. And this one should make her laugh- - -tonight Wilson went to the neighbors for a late night babysit- and when he was supposed to go to bed, he came out and told them that he did not have any desert- they sent him back to bed. THEN he came back out and said - even though he did PLAY SOMETIMES during the day, that he was in FACT, nocturnal and was unable to sleep. (Then he got in big time out and had to go BACK to bed.)
hehe- hope to see you tomorow
We are glad that Allison is doing a little better. We hope the Mishabeirach (prayer for healing) that we said for her in some way helped even a little.
Elaine and Richard
Hi Brian, Kia ora from New Zealand:
I'm a little slow getting news here in New Zealand so I just heard about your daughter's plight. If there is anything to the thought I saw posted above that good vibes from around the world are beneficial, please add my best wishes from about as far away from Denver as you can get. The Maori tradition for best wishes to the sick is the hongi - pressing the forehead and nose together with a hand behind the neck. Try one on Allison for me with best wishes from down under.
Rodger Steeper
We have been following along with your struggles and strife daily and appreciate your sharing with us. We think about you daily and just knowing your progress helps. Obviously, you are on our minds continuously. We worry about Allsion. As parents, we worry about our own. As friends, we worry about you. We feel helpless. We just want you to know we are out here, thinking and praying for you!
Brian, I know it is difficult in your role as a parent and a physician, but it is a blessing in disguise. Who better to understand the other side. Who better to help explain to Dianna, family and friends. It is nice to have someone to translate in a world and language that we take for granted. I realize it's difficulties, but I greatly appreciated the ability to at least have some knowledge and background. It is difficult to imagine experiencing this being a complete foreigner to medicine. I am glad I did not have to experience it that way, although wishing we never had to experience it at all. From both perspectives, I would be happy to talk and support you.
I wish for you and your family the day when the four of you can laugh, smile and cry without any thoughts of cancer or sickness. The days when your roller coaster is behind you and health and happines can move you forward. Obviously, at any point, we are here for you. Just know that our thoughts and prayers are with you and Allison.
The Rubins-Mark, Shelley, Max, and Myles
P.S. Dianna, I am still taller than you!
dear Mark...
since when???
;-)
nice to read you here (despite the circumstances).
(di & bri -- since mark didn't leave an address, i had to post this here...)
my love to you all!
jana
Thanks for posting this update. It is Memorial Day here in Israel and the "siren" just rang out for 1 minute. Tomorrow is Independence Day and it should be quite active with most businesses shut down and families celebrating together. This can be such an amazing part of the world!!!
A day hasn't gone by that my thoughts haven't wandered to all the Litvak-Winns in Stapleton. It will be nice to be back there on Tuesday.
I am keeping positive thoughts that we will soon see Allison hanging out in the neighborhood and getting stronger from all the energy so many have and continue to send her way each day.
I want you both to know that since the first I heard of this attack against Allison's health and your family I have prayed fervently for strength to be added to you and yours, for peace and comfort in your great support system and in the God whom you trust as well as for Allison's healing.
I will continue to pray asking for wisdom to be given in each step of the way. Please know how very precious you are, not forgotten for a moment, may strength and encouragement be added to you today and may the many seeds you have sown over the years helping others on their road to recovery now be returned to you and yours 100 times over.
one of the many
Hi all -
Wanted you to know that you are in our thoughts every single day. It was nice to see Emily on the soccer field this weekend - Grace was so glad to see her friend - and yet it hurts our souls that Allison couldn't be running around out there too. We all wish that we could somehow come up with the magic to make it better for each of you, and yet from our own experience know that all that we can offer is a shoulder to lean on. Know that you have lots of shoulders - and hearts and minds - pulling for you!
We send good thoughts for a swift surgery tomorrow and recovery that allows you all to be home together again soon.
Best wishes,
Christine, Jason, Grace & Delilah
Like a lot of the folks here, We are praying for you regularly and now will focus on Monday's surgery and getting you guys home asap. We pray too for the time when you are not back home recovering but back home living. Living and laughing and growing up.
I was glad to see Mark Rubin's note and hope that you can take him up on his offer. Regardless of how large and obviously wonderful your community is, I imagine that you feel isolated and lonely at times.
Unfortunately, he has first hand experience and probably understands a lot of what you are going through. A great gift that came out of my wife's illness is that she now talks to others similarly afflicted. I've watched her help a number of people and a big part of it was to simply help them realize that they are not alone in their struggle.
As Mark so eloquently put it, we worry as parents and as friends. We feel helpless but hope that our words can offer some sort of support for you.
Hang in there
Mark, Kerrie, Lauren and Kylie Halmi
I will be thinking about all of you today - especially Allison while she continues on her journey to coming home. I can't wait to see her bright eyes and smiling face back here in the neighborhood!!
Love,
Sarah, Ari, Abe and Grace Kaufman
Dianna and Brian,
Just last week I heard about Allison's cancer. I'm so sorry to hear about what your family is going through.
I can remember holding Allison at a backyard party in Park Hill when she was a baby, it must have been in 2000 during late summer. I was just a few months post-op following my brain cancer surgery, it was the first time we met. Dianna, you let a virtual stranger with a big nasty scar on his head hold your baby! It felt like a gift, it was wonderful holding her. She was part of my recovery. I'll be trying repay Allison and pass along my good luck in the brain cancer fight by sending thoughts of recovery, hope, and good wishes.
You are in our thoughts and prayers constantly. Hoping that every day is better, and every day brings Allison closer to a complete healing. May you all continue to find your strength!
Love Steve and Steve
I'm sorry Allison has to go through another surgery, but I'm happy that another step is going to be taken to get her home sooner! I think the shunt will provide so much relief for Allison. You are all amazing the way you have been able to adjust and face this situation head on. Brian and Dianna, you have been such an inspiration to Hadar and me..what amazing parents you are. Be well, and we'll be thinking of you and Allison Monday.
with love
liza
Dianna:
We were just at Children's Hospital on Friday for an appointment for little Jack and I thought of you and Allison in that hospital where some parents can drop in for a quick appointment and others have to endure long days and nights--some very scary and others more hopeful--as you have. Thankfully, you're in good hands with the staff there! I hope Allison's surgery goes well today and you're all home soon.
Take care--
Lisa
My wishes and prayers for Allison's return to health are so strong that the server may crash when I send this.
Tons of love and support to you all. Nona
Book club is tonight. I am really looking forward to being with others who know you, love you and are praying for Allison.
It seems like this blog is turning into a bit of a George Washington High School reunion.
I am happy to catch a glimpse of everyone's lives through this window, but it would be wonderful to reconnect.
Jamie
Brian and Dianna,
We are thinking of you and Allison and sending our thoughts and prayers. We hope Allison will recover quickly and be home with you soon!
Ruchi and Mark
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